Thursday, June 26, 2014

June 24 - A Day To Remember

June 24, 2014
Today is a day to remember in the Callan household. This morning we found out that the results from a Phase 3 Study for Cystic Fibrosis came back with excellent results for those individuals with the F508del gene. Ellis is in her own clinical study of Vertex Pharmaceuticals for children ages 2-6 with the G551D mutation. So far, she has been gaining weight, taking a lower dosage of enzymes, and not having as much blocked mucus as she might have without the drug.
This new drug will hopefully be approved by the FDA before the end of the year! This is life-changing news for about fifty percent of the CF population! A true miracle and reason to celebrate! Needless to say, we are very blessed and grateful for all of those who have worked so diligently towards a cure.

Thank you from the bottom of our hearts.
Karen and Kelly

Ellis just performed in her very first dance recital. She remembered a lot of the moves, even though she was the youngest in her class. I, of course, had to be there. :) Such a sweetheart!
Watch her dance recital performance here.